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I was 9yrs when I got G. Barre. Now 39. Still have problems with health & weakness! Can anything be done now?
Had constant sicknesses when I was a kid and thru teen yrs and adulthood too. These last years have been really tough. Constant weakness, headaches, major depression, twitching in my legs, numbness, no sex-drive, had bad psoriasis (Immune system) too! I have been to too many doctors and specialists to count!!! No real answers, just a "band-aid" for this and a "band-aid" for that (psoriasis=skin cream, depression=prozac, no sex-drive=Viagra, headaches=Tylenol, weakness=eat something healthy!)! You get the picture!!! Don't know what to do!? Some days better than others though.
Have been seeing an Immunologist though ever since my Psoriasis got really bad this past winter (Feb 2006). Methotrexate has helped greatly! Immune system=all related from what I can gather!
GUILLIAN BARR'E SYNDROME - An inflammatory disorder in which the body's immune system attacks the nerves outside the brain and spinal cord (Peripheral Nerves).
Symptoms - Weakness, Numbness, tingling in the arms. feet and legs, loss of sensation, very slow heart rate, bladder control difficulty, may lead to paralysis.
Another well- known symptom is paresthesia or weakness of the upper and lower extremities. Respiratory failure might occur and cardiac dysrthymias.
Certain therapies can lessen the severity of the illness and speed up recovery. IVIG( intervenous Immunoblobulion) and Plasmapheresis are some therapies. Be vigilant for Cranial nerve palsy which is caused by Guillian-Barre Syndrome.
Because you survived GBS as child; you are very fortunate and resilient. So I'm sorry to hear that you're still suffering from this debilitating disease.
NO CURE is available but treatment is.
Treatment is symptomatic
