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Psoriasis Chat
how do you feel about having psoriasis?
interested in talking to others about having psoriasis. i have had it for over 20 years and am still emotionally disabled by it. would like to know how others deal with all aspects of the disease and how it affects your everyday life am having hard time finding chat rooms and not much time (with 5 kids) to be on the computer i would enjoy the opportunity to share my thoughts feelings and past experiences and to not feel so alone in my disease
I guess for me it's really hard to talk about this without tearing up. It's not something I really talk about often.
The holding my arms a certain way so people don't see the bumps on my elbows, or sitting a certain way so people don't notice the bumps on my knees....the wearing long sleeves and jeans and burning up in the summertime, and the bittersweet winter where I can cover up my skin but it dries out and the psoriasis gets worse. My children sitting in my lap watching tv and playing with the skin on my elbows and knees without realizing how that hurts my heart that it's calling attention to the problem...not wanting them to see me any differently than any other Mommy but answering the questions of why I'm different skinwise or why I don't wear certain clothes. Being asked out on a date and having to cover myself up and hope that we don't grow close enough to make love, or if we do how I'm going to explain my skin problem and afraid he won't want to be intimate. Thankfully I'm married now to a wonderful man who could care less. There are some good guys still out there 
It's a hard thing to swallow being different, and because it's considered a skin irritation by most it's not viewed as a serious problem but your self image and esteem go down the toilet with the problem.
I actually have had a breakthrough with my psoriasis lately and I actively made the decision to try to share it with others in hopes they wouldn't sit in their car crying after a job interview as the interviewer stared at my knees while I wore a skirt, knowing I probably wouldn't get the job because of it *and I didn't even though I was highly qualified*. I'm going to copy/paste the answer I've given to a few other people, and hopefully it will help you both in what I shared about how I felt, because I do understand, and maybe help you too. If it does, please let me know and write to the company like I'm doing. I don't want others feeling how I've felt.
Here goes If you need someone to talk to, message me anytime. I love making friends, my yahoo messenger is on often, and thank you for your time. It takes guts to initiate a question about this, and I hope I've helped let you know there's nothing wrong with you. Because there isn't.
I have had such a fantastic fix to my psoriasis problem that I've actually started searching the yahoo questions to tell others what I did. I'm not wanting to spam everyone to death so I'm only going to copy/paste to a couple of more people what I've shared in hopes it helps others. If others have tried my remedy and it works for them too please contact the company as I think the more people do the more people will try this and end the painful itchy creams we've ALL tried.
So here's what I've shared:
I have been dealing with psoriasis for over 10 years. Started on my elbows, and then went to my knees and on my legs. I've tried about every prescribed option out there cream wise. I even took steroids and it helped but didn't eliminate the problem. Then the strangest thing happened. I had dehydrated skin so I bought Vasiline Intensive Care Total Moisture lotion and started using it. IMMEDIATELY I saw results. Two months later and I can say I have knees and elbows! I hadn't seen them in years! I can wear tank tops and shorts again without looking like something's wrong with me. It's so hard to explain to others who don't have psoriasis what it's like and how much it affects my self esteem, having to wear jeans and long sleeved shirts in dead summer and dying from the heat, or wearing something comfortable and having people stare and ask questions. I actually cried more times than I'd like to admit. Now I feel different. It seemed with the other stuff that it would help keep it from expanding and growing, but wouldn't completely eliminate the growth already there. I can't believe a few dollars spent on over the counter lotion could do this for me since I'd spent hundreds of dollars over the years on stuff that burned and itched and hurt my fair skin. I'm not a huge testimonial writer, but I'm actually writing the company to say thank you, I feel like me again. I hope it helps, and good luck!
Oh, I did want to add that I use the lotion after my shower in the morning and once again before going to sleep. I don't have to slather myself all day long like I have with the eucerine *spelling?* cream that made it sore to the touch. I don't have to keep it wet all day for this stuff to work. I SO hope I'm not a fluke and this might really make a difference for others. Good luck with it!
